Any medical information included is based on a personal experience. For questions or concerns regarding health, please consult a doctor or medical professional.
Although many people may experience similar symptoms, Lyme disease looks different for everyone. Whether you’re battling largely “invisible” symptoms, such as pain or fatigue, or something more apparent, like rashes or hair loss, these symptoms can often manifest in a variety of ways, depending on the individual and their unique health situation, and result in co-infections or comorbidities.
But even though Lyme symptoms can take on different forms, it is important to raise awareness of these manifestations so those with Lyme disease can be better understood and have more productive conversations with loved ones, friends and doctors. So, we asked our community to share photos depicting one of the symptoms they experience. Let’s shed some light on how complex and multifaceted Lyme disease can really be.
Here’s what our community shared with us:
“I was at the eye doctor and not feeling well. I just laid on the floor in such pain on my service dog for over an hour because things were running so slow. I didn’t care about any of the many people that saw me laying eyes closed in the waiting room because my body was in so much nerve pain that all I could do was grab onto my service dog and wait until they were done.” – Cassidy S.
“Chest pains near my heart from cartilage and muscular pain. I have a PICC and do daily infusions that are really helping, but one little thing can turn severe fast. It’s terrifying, lonely and hard to explain. Hospitals are usually the last resort with someone with Lyme due to their complete ignorance on chronic Lyme.” – Genevieve G.
“Paralysis. This symptom caused me to rely on others for every need including walking, driving, using the bathroom, drinking and more.” – Cassidy C.
“I’m usually a ray of sunshine, but behind closed doors I am in the dark mentally, and physically. Being bounced from doctor, to doctor. Infectious disease physician refuses to treat me for Lyme disease until after further test results from lumbar puncture, and more tests reveal other conditions in addition to the Lyme. Missing work from a career I actually love. Not having enough energy to play with my children, clean my home the way I want, or make plans with friends. When I do get a little burst of energy, I end up paying for it shortly after the fact. I forget what normal feels like.” – Angela R.
“My boyfriend snapped this pic after a very long night. No matter how much I sleep, I’m perpetually tired and achey.” – Kathryn B.
“Anxiety about illness… concern for my entire family… heavy on my mind… pray to find and shed the light and for strength to help others.” – Darlene D.O.
5. Nervous System Dysfunction
“Fifty to 60 injection sites from my skull to my hips trying to calm my nervous system. This is done every two weeks for months on end. The circled areas are still inflamed almost two hours after the injection. This is a treatment my support systems are mostly unaware I do.” – Lanna B.